TELETHON - BANDO TELETHON UILDM "RICERCA CLINICA PER LO SVILUPPO DI PROTOCOLLI MULTIDISCIPLINARI E AZIONI PREVENTIVE A SUPPOTO DEL PERCORSO DI CURA DELLA PERSONA ADULTA CON UNA DISTROFIA MUSCOLARE" - Deadline 28/04/2023

28/04/2023 Scaduto

With the present Call, Telethon will devote funds derived from the Patient Organisation UILDM (Unione Italiana Lotta alla Distrofia Muscolare) joint fund-raising campaign to clinical research projects aimed at improving quality of life of people living with a genetic muscular dystrophy condition. By the will of UILDM, the focus of this edition will be clinical research to address the complex medical needs of people with a muscular dystrophy in their adult life. Studies may also include, but not be limited to, information related to transition into adulthood. The funded clinical research projects on the above diseases will address the following research areas: - Cardiological involvement; - Cognitive and behavioural impairment; - Falls, fractures and bone metabolism; - Natural history studies and outcome measures; - Nutritional needs and bulbar function; - Prognostic or predictive biomarkers;

Fondazione Telethon Ente senza scopo di lucro nato nel 1990 e riconosciuto dal Ministero dell'Università e della Ricerca per rispondere all'appello di pazienti affetti da malattie rare.

https://www.telethon.it/